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Substance Use, End-of-Life Care and Multiple Deprivation. Practice and Research 1st Edition

ISBN: 9781032035468
Διαστάσεις 240 × 16 cm



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Focussing on end-of-life care for people who use, or have used, substances, this book explores their social and health care needs and the multiple disadvantages they have often experienced, discussing the complexities around access to care that result.

Presenting models of good practice, case studies and empirically based evidence, Substance Use, End-of-Life Care is informative, rigorous and useful for policy and practice development. The first section foregrounds the personal experiences of people living with substance use, their families and friends, and the health and social care professionals who work with them. The second section looks at how health inequalities can impact people in need of palliative care, including chapters on health literacy, mental health and learning disabilities. The final section explores social challenges that may be experienced, including homelessness, sex work, racism and incarceration.

This interdisciplinary volume is essential for researchers, practitioners, students and educators working around substance use, mental health and palliative and end-of-life care, who are looking for guidance and a reference for their work in supporting people at the end of their lives who have multiple and often complex needs.


Chapter 1- Introduction

Gary Witham, Sam Wright, Sarah Galvani


Part I: Different voices (Introduction by Gary Witham)


Chapter 2 – Death is not an abstract now: approaching end of life as someone using substances

Sam Wright, Amanda Clayson and Jo Ashby


Chapter 3 – Views from the coalface: social and health care professionals working with people using substances at, or near, the end of their lives

Sarah Galvani, Cherilyn Dance and Sam Wright


Chapter 4 – Seeing the common ground: family and practitioner caregivers’ perspectives of palliative care for people using substances

Sam Wright, Sarah Galvani and Gemma Yarwood


Part II: Health inequalities (Introduction by Sam Wright)


Chapter 5 – Health literacy and substance use within palliative and end-of-life care

Gary Witham


Chapter 6 – Learning disabilities and substance use at the end of life: listening to the unheard

Gary Witham and Sarah Galvani


Chapter 7 – Improving end-of-life care for people with co-existing mental health and substance use

Lucy Webb


Chapter 8 – Ageing (dis)gracefully: People who inject drugs living with hepatitis C and the provision of end-of-life care

Peter Higgs


Part III: Social inequalities (Introduction by Sarah Galvani)


Chapter 9 – Homelessness and substance use within palliative and end-of-life care

Niamh Brophy and Alison Colclough


Chapter 10 – Jane’s journey: substance use, palliative care and sex work

Adele Brien


Chapter 11 – Reflecting on the challenges and inequalities facing Black and minoritized communities in accessing substance use services, palliative and end-of-life care

Anya Ahmed and Lorna Chesterton


Chapter 12 – Unequal in life and death: substance use, disadvantage and end-of-life care in prison

Marian Peacock and Mary Turner


Chapter 13 – Reflections and recommendations: multiple disadvantage, substance use and end-of-life care

Sarah Galvani, Sam Wright and Gary Witham