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Research Methods in Palliative, Supportive, and End-of-Life Care Second Edition

Author: David C. Currow
SKU: 9780192898203
ISBN: 9780192898203
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Περιγραφή

Palliative and end-of-life care are concerned with the physical, social, psychological, and spiritual care of people with advanced disease and serious illness. They affect people in all societies, all countries, and are growing fields post-Covid. Changing demographics and treatments mean that people are living longer with serious illness and multiple conditions, often needing symptom control and complex care and support. Research in these areas present a particular challenge, both because of the ethical and practical difficulties inherent in working with very ill patients and their families, and because of the range of research questions considered to be within the domain of palliative care.

Building on the first edition, this book provides an introduction to research methods in the fields of palliative, supportive, and end-of-life care, and complex patients. Edited by six experienced palliative care academics with acknowledged expertise and international reputations in this field, this book is both authoritative and accessible. It encompasses methods used in both clinical and health services research, covering methodological theory, design, measures, and practice and case examples across the entire scope of research. The book has been fully updated and includes the latest developments such as use of big data and forming research collaborations.

This will be an essential methodological book for clinicians, academics, researchers and educators, and especially those undertaking a MSc, PhD, or early career researchers in palliative care and related fields.

  • Explores research methods as applied to the unique needs of palliative, supportive, and end-of-life care
  • Edited by six experienced palliative care academics, with chapters from over 50 global contributors
  • Accessible for students and early career researchers in palliative care and related fields, as well as experienced clinicians, practitioners, and researchers

New to this Edition:

  • New and expanded sections include trials; big and routine data; survey, qualitative, health economic, and outcomes research; patient and public engagement; and a section covering skills needed in any research project.

Περιεχόμενα

Part 1. Theory and practice
Chapter 1:Why research palliative, supportive, and end-of-life care?, Nancy Preston and David Currow
Chapter 2:Recognizing complexity in palliative, supportive, and end-of-life care settings and studies, Sophie Pask and Fliss E. M. Murtagh
Chapter 3:Overview of main study designs and approaches, Massimo Costantini and Irene J. Higginson
Chapter 4:Designing and conducting clinical trials and research in palliative care and end of life: ethical and mental capacity, data integrity, and practical issues, Ludovica De Panfilis and Meera Agar
Chapter 5:Public and community involvement in palliative care research: principles and practicalities, Lisa Jane Brighton, Margaret Ogden, and Catherine J. Evans
Part 2. Specific research designs and approaches in palliative, supportive, and end-of-life care
Chapter 6:Survey research: design, methods of data collection, questionnaire design, and conduct, Joachim Cohen and Kenneth Chambaere
Chapter 7:Design and delivery of clinical trials: from idea to final publication, Ørnulf Paulsen, Marianne Jensen Hjermstad, and Stein Kaasa
Chapter 8:Development and evaluation of complex interventions, Carlos Seiça Cardoso and Barbara Gomes
Chapter 9:Epidemiological research, including big data, Lorna K. Fraser and Stuart W. Jarvis
Chapter 10:Overview of qualitative methods, Philip J. Larkin and Michael Connolly
Chapter 11:Qualitative methods of data collection and analysis, Nancy Preston and Sheila Payne
Chapter 12:Mixed methods research, Jacqueline Alcalde, Breffni Hannon, and Camilla Zimmermann
Chapter 13:Process evaluation, Suzanne Guerin, Catherine Jordan, and Philip J. Larkin
Chapter 14:Outcome measurement, Margaret H. Sandham and Richard J. Siegert
Chapter 15:Health economic methods in palliative, supportive, and end-of-life care, Charles Normand and Peter May
Chapter 16:Systematic reviews, Magnus Ekström, Michele Hilton Boon, and Daisy J. A. Janssen
Chapter 17:Qualitative evidence synthesis, Kate Flemming
Part 3. How to do it
Chapter 18:How to develop a research question, India Tunnard and Matthew Maddocks
Chapter 19:How to write and register a research protocol, Cinzia Brunelli and Morena Shkodra
Chapter 20:How to establish and grow the right team, Sharon Kaasalainen and Tamara Sussman
Chapter 21:How to gain approval from the ethical review board, Jeroen Hasselaar, Maaike Rijpstra, and Ian Koper
Chapter 22:How to ensure good recruitment, Lesley Dunleavy
Chapter 23:How to ensure good-quality data by avoiding missing data: strategies for preparing and monitoring studies, Kim Beernaert and Kim Eecloo
Chapter 24:How to use reporting guidelines from the EQUATOR Network, Anna E. Bone and Maja Furlan de Brito
Chapter 25:How to write a research paper for peer-reviewed journals, Luc Deliens and Julia M. Addington-Hall
Chapter 26:How to disseminate palliative care research findings, Linda R. Brown and Linda James
Chapter 27:How to establish national and international research collaborations, Guillaume Economos and Irene J. Higginson
Chapter 28:How to conduct global research in palliative care, Richard Harding, Oladayo Ayobami Afolabi, and Eve Namisango
Chapter 29:How to study for a PhD, survive, and even enjoy it, Cheng-Pei Lin and Jane Lowers
Chapter 30:How to review a paper submitted to a journal, Catherine Walshe
Chapter 31:How to improve your research impact, Lesley E. Williamson and Katherine E. Sleeman
Chapter 32:How to win a research grant, Irene J. Higginson