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Critical Dementia Studies An Introduction 1st Edition

ISBN: 9781032118802
ISBN: 9781032118802
Διαστάσεις 23 × 16 cm



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This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it.

The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice.

The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development.

The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.


Introduction: Why critical dementia studies and why now?

Linn J. Sandberg and Richard Ward


Part I: Reclaiming and recasting

1. I want to be the orchestrator of my entire fabulous life

Dáithí Clayton

2. Small quantities at a time: On music, poetry and social media

Ronald Amanze

3. Who knew a pothole could bring it all back?

Patrick Ettenes

4. Nobody is allowed to offend us – not by language, nor by attitude

Helga Rohra

5. Recognizing Birkby: Living and caring with dementia

Wendy Hulko, Marsha Griffith and Birkby Griffith


Part II: Re/framing

6. ‘Lost in time like tears in rain’: Critical Perspectives on Personhood and Dementia

Stephen Katz and Annette Leibing

7. Multi-Species Dementia Studies: How moving beyond human exceptionalism can advance dementia’s more critical turn

Nick Jenkins

8. Reframing ‘ethnicity’ in dementia research: Reflections on current whiteness of research and the need for an anti-racist approach

Maria Zubair

9. Frames of Dementia, grieving otherwise in The Father, Relic and Supernova: Representing dementia in recent film

Sadie Wearing


Part III: Care and control

10. Precarity and Dementia

Amanda Grenier and Chris Phillipson

11. An Emerging Necropolitics of the Dementias

Hamish Robertson and Joanne Travaglia

12. Segregation and Incarceration of People Living with Dementia in Care Homes: Critical Disability and Human Rights Approaches

Linda Steele, Lyn Phillipson, Kate Swaffer and Richard Fleming

13. The carnival is not over: cultural resistance in dementia care environments

Andrea Capstick and John Chatwin


Part IV: Forging alliances 

14. Convergences, Collaborations, and Co-conspirators: The Radical Potentiality of Critical Disability Studies and Critical Dementia Studies

Hailee M. Yoshizaki-Gibbons

15. Thinking dementia differently: Dialogues between feminist scholarship and dementia studies

Linn J. Sandberg

16. Revolutionising dementia policy and practice: Guidance from ‘the memory girl’, an accomplice

Wendy Hulko

17. Taking a Queer Turn – the significance of Queer Theory for Critical Dementia Studies

Andrew King

18. Neurodiversity and dementia: Pitfalls, possibilities and some personal notes

Linda Örulv

19. Thinking back and looking ahead: Co-ordinates for critical methodologies in dementia studies

Richard Ward and Linn J. Sandberg